Brande is a mom of 4 kids - ranging in age 9yrs -1yr. Eight hours after her 3rd baby was born he started having seizures. Doctors sent him to Primary Childrens where they diagnosed him with HME (a condition where 1/2 his brain is larger than the other) odds were that Brande's baby would never walk, never talk and die at young age.
Her boy Tyson suffered 30-50 seizures a day. Brande shared:
"They were pretty much nonstop...in addition to infantile spasms, which were so painful to watch. He would stop breathing up to 2 minutes at a time, and when he would have a seizure and more than likely he would throw up his medication...and we would have to give it to him again.
My husband and I wouldn't get much sleep. My husband would stay up late with him on the couch so I could go to bed. When he brought him in the room, he would put him in his bassinet next to my bed and I would sleep with my hand on Tyson's chest so I would know if he stopped breathing, which was often during the night. I can't count the number of father's blessings he got at 3:00 in the morning."
Tyson underwent brain surgery at 3 months of age to help with with the seizures. Doctors disconnected half of his brain. It has been a long road but through it all Brande stated, " Tyson is a daily reminder of the blessings we have been given. He is the one thing that can put perspective into our lives on a daily basis. The things he has been able to accomplish with a half a brain is astounding. We can honestly see the hand of God in our lives."
"YOU ARE DOING GODS WORK, YOU ARE DOING IT WONDERFULLY WELL. HE IS BLESSING YOU, AND HE WILL BLESS YOU EVEN --NO, ESPECIALLY -- WHEN YOUR DAYS AND YOUR NIGHTS MAY BE MOST CHALLENGING."
-'Because she is a mother'- Elder Jeffrey R Holland
Tyson was attending therapy where he learned to walk but therapy costs the Juber family nearly $6000 for a 3-wk session. To help raise money so Tyson can continue his therapy. There is a 5K Charity run/walk on June 11th at 9 a.m. at Nolan Park in Eagle Mountain, Utah. Cost is $15 a runner, with a kids run (half a mile) around Nolan Park at 10 a.m. $5 a runner.
You can view Tyson's therapy video at
http://animoto.com/play/PQZIq69vESatM0Ywd6lwiQ
http://animoto.com/play/PQZIq69vESatM0Ywd6lwiQ
You can also follow Tyson's story on facebook at Tyson Juber Charity or on the following web page where you can donate as well:
Tyson after brain surgery
TYSON TODAY!
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